We are struggling with PICA again with Gavin. Not sure if we are struggling again or we have just become aware of it again. Are there ways of discouraging it? Should we down play it? Or should we crack the whip so to speak?
EJ has been really struggling with sensory related things. He is not tolerating clothes right now very well. It have evolved into he doesn’t tolerate his diapers either. He acts like they actually hurt him. We have removed tags and try to find clothes without pronounced seams but the diaper situation is going to be a problem.
I have been looking for my “Easy Button” but I seem to recall them being re-collected when they diagnosed my kids. But if anyone has an extra they want to send me that would be great 🙂
Elliott Richard is believed to be very high functioning aspergers. We have been paying more attention to some of his behaviors as of late and have noticed some things. ER has NEVER tolerated the tags on his shirts. I have to cut them out (which drives Lizze crazy cause we won’t know what size it is) or he won’t wear the shirt. He says they hurt him. We kinda played it down before but now realize it might just be sensory issue. He also cannot stand water passing over his ears. Again maybe sensory.
As Dr. Patti has stated, most people would never notice any of these things. This kind of stuff shouldn’t effect his life in any real negative way. We do however, know that he is struggling with anxiety right now. He constantly grabs himself like he has to go to the bathroom. As we all know, aspergers kids are very prone to anxiety issues. We are working on some testing forms for him to give us a better picture of where/if he falls on the spectrum. The family history certainly leads us to think it’s a real possibility.
We don’t want him to be autistic or have ADHD. However, we do want him to have the best opportunities in life so if there is something he needs help with we want to know, so we can get that help for him. ADHD is a very real possibility as well. Lizze has ADHD and it’s “extremely” genetic. It’s more likely then not our kids will have it to some degree. We just want to try and stay ahead of the game.
Thank you for sharing our lives. LT
Paradise. More like paradise lost. Today has been very trying so far. Gavin lost it right before lunch. he and ER were playing. Gavin decided to make it into a game “with no rules”. However, there was no way for ER to win because Gavin wouldn’t let him. He frustrated ER with this. Lizze approached Gavin to question him about what happened. ER said Gavin was cheating. Gavin wouldn’t just answer the questions. Lizze asked him again to answer. This time he bit her head off.
I called Gavin over and made him sit like a pretzel on the floor. This keeps him from kicking and jumping around. I asked him the same questions and he just started to scream. Maggie (our dog) went over to check on him and he smashed her in the face with his elbow on purpose. Then he stood up and started stomping so hard he actually knocked the lid of the aquarium. At this point he earned oatmeal for lunch. Which he didn’t like so everything just escalated.
I finally got him to go to his room. He waited for lunch as long as we had to wait for him to stop screaming. He hasn’t had oatmeal in many weeks so I think he was caught off guard. I don’t know if it even has the desired effects anymore but it’s all we really have left to use. It defiantly is a consequence for him and he hates it, so I guess that’s something. We will need to figure other options out because it’s a long summer.
Gavin loves to watch movies like Transformers, Harry Potter ect. However, shows like Blues Clues will send him running upstairs. My guess is that it’s a sensory thing. We don’t really understand why but suspect it has something to do with shows like Blues Clues, Dora ect always have a lesson in them. If Gavin perceives someone is going to get into trouble or be embarrassed he freaks out. Even if the show is designed with much younger children in mind. Keep in mind Gavin is emotionally about 3 years old.
I was wondering if anyone could shed so light on this for me? Do any of your kids do anything similar?
It’s pretty hot out (82F) right now. Gavin through a fit because we made him turn his ceiling fan on. He won’t sleep with the windows open either. He sleeps in a sweatshirt, sweat pants and sock all while under his comforter and buried under his stuffed animals. He says he’s not to hot but we are afraid he’s going to over heat. We don’t have central either. Does anyone else have this issue?